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Planning for Hope: Living with Frontotemporal Disease
The Association for Frontotemporal Degeneration
FTD Planning for Hope from a woman working in financial services who was affected by this illness
University of California, San Francisco: Treatments: Frontotemporal Dementia
Missing link found between brain, immune system; major disease implications – ScienceDaily
Dementia As An Autoimmune Disorder
Alzheimer’s Association: Frontotemporal Dementia (FTD)
Mayo Clinic: Diseases and Conditions: Frontotemporal dementia
National Institute of Neurological Disorders and Stroke: Frontotemporal Dementia Information Page
University of California, San Francisco: Overview – Frontotemporal Dementia
Social Security Administration (SSA) has a “compassionate allowance” program in which workers diagnosed with Pick’s disease, PPA or ALS can qualify for Social Security disability benefits. You can also call the SSA at tel: 800.772.1213.
Videos
Frontotemporal Dementias: Teepa Snow Videos
FTD Diagnostic Overview – 2005 Frontotemporal Dementia Caregiver Conference
Books
The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Related Dementias, and Memory Loss by Nancy L. Mace and Peter V. Rabins
Lydia's FTD House 